Carl Tilson is one of the loudest voices in the UK and has his finger on the pulse of Duchenne Muscular Dystrophy on a daily basis.
Born with Duchenne Muscular Dystrophy, Carl Tilson has utilised social media as a platform to bring about change to the industry in the UK, but his increasing attitude and sense of right over other disabled people is getting some offside.
Branding himself as “Relentless” in 2015, Tilson’s adventures on social media have been inspiring but always seem to have a strong and obvious undertone of self worth, entitlement, and increasing arrogance.
Tilson says that he represents the MD (Muscular Dystrophy) community, this is despite his failed attempts to access experimental drug treatments to cure MD in 2013/14 where he took it all the way to television to air his story.
Tilson is a fine advocate – there is no denying that.
But there are many fine disability advocates all around the world, many of which make actual change without once playing the victim of disability.
Anyone who says Tilson doesn’t want just as much attention, heralding, and popularity as he does change for the disability community is lying to themselves.
When questioned by The Real Michael Pulman on Twitter yesterday, Tilson responded with the following:
“I will say what I want, if people don’t like it f*ck them,” Tilson said.
When The Real Michael Pulman claimed that there were other advocates around the world who work just as hard, Tilson responded with “don’t preach to me”.
Rather than answer his critics, Tilson blocks them from social media, attempting to shut down the voice of anyone who questions him.
It is clear that Tilson’s ego and want for media success is more important to him than his want to help society increase the rights of disabled people, something his brand of “Relentless” claims to do.
It is false branding, false advocating, and a slap in the face to many strong and respected disabled people who advocated up until they could do so no more.